Documenting Failure - Episode 2 - Detailed Timestamps
Detailed timestamps:
00:00:00 - Intro ice breaker conversation between the guests
00:00:31 - Intro from Toni Dee
00:02:08 - Intros from guests
00:05:21 - Toni Dee sets intention for the episode
00:06:21 - Toni Dee asks Can you talk a little bit about your experiences starting those organisations, a little bit about what your organisation does for its communities, and also what it gives you as a disabled artist?
00:06:57 - James speaks of the way he started Tourette’s Hero
00:08:45 - James speaks of what does access mean for mental health
00:09:36 - Toni Dee asks experience of starting an organisation and why you decided to do that and what your organisation does, what it gives you as a disabled artist?
00:09:43 - James explains how he did not intend to start and organisation, he was left with no choice
00:10:04 - Selena talks about how/why she started an organisation
00:10:52 - Selena mentions Elevate funding and being an organisation is also constant work.
00:13:14 - Jess explains how she made a company, the Paul Hamlyn Foundation, being a community company and working outside of capitalist, normative supremacy.
00:19:26 - Toni Dee asks what disabled knowledge have you centred that means that something that other organisations are doing, you're choosing to do different, to deviate from?
00:19:46 - Jess talks about survival, disabled knowledge and skills being valuable, and how support in personal life is tied to being able to work and exist. Mentions of ableism.
00:22:00 - Selena talks about her epilepsy diagnosis, what this meant for the company and risk.
00:23:40 - James talks about how he built his organisation in the way he needed for his brain.
00:24:14 - Selena talks about wanting that care that you have for yourself to be extended to others in the organisation.
00:25:24 - Jess talks about Arts Council, mitigating barriers, different ways of working depending on your disability and being a disabled artist.
00:28:50 - Guests make jokes about Donald Trump and risk.
00:29:58 - Toni Dee asks if the guests can talk about risk and how people make good risky decisions. Jess talks about disabled people constantly taking risks in life, sharing risk and risk used to suppress us.
00:34:22 - James talks about the excitement of risk and the risks that others don’t think about.
00:36:09 - Jess talks about being allowed the space to imagine those possibilities and facing the discomfort of some people who are meant to exist differently.
00:37:28 - Selena talks about the different stakes of risk and how this is used to punish disabled people.
00:38:56 - James comments on how we as disabled people are constantly risk assessing.
00:39:20 - Jess talks about the danger of saying that if you need more support, you are riskier. How losing disabled individuals’ skills, imagination, vision, should be on the risk register.
00:41:45 - discussion of censorship, Palestine/Gaza and reputational risk.
00:42:37 - Toni Dee talks about having difficult conversations with company partners.
00:43:29 - Selena talks about trust is important when talking about risk.
00:44:05 - Jess talks about how risk is responding to life when the world does not think about you, risk and access after COVID and doing that with climate and disability justice.
00:46:30 - Selena mentions the creative energy of running an organisation.
00:46:54 - Jess talks about the DWP and shifting creativity from one project or focus to another.
00:48:28 - Toni Dee asksWhat has been something that you have done that has maybe not looked the way you thought it was going to look? And it was the right thing for you, your organisation, for the way that that thing needed to be delivered.
00:49:04 - James talks about the company going bankrupt, difficult decisions, recruitment, building trust, access workers and How are we guided through an experience by somebody that's been through it before?
00:52:10 - Jess offers that they are a resource to talk to people whilst the systems are not in place. You don’t have to know us to reach out. Jess also talks about the intimacy of a relationship with the access worker.
00:55:03 - Toni Dee talks about her learning from being Selena’s Support Worker.
00:56:00 - Jess talks about the joyful failure of their recent experience of a show in Germany and the learnings from this.
00:58:34 - Selena talks about her joyful failures.
00:59:48 - Selena talks about recruitment and getting the vibes right.
01:00:23 - Toni-Dee talks about how we keep documenting failure and looking at failure as something else.
01:01:18 - Jess talks about not taking failure personally, failure of systems and speaking out about this.
01:03:26 - Toni Dee talks about the expectation put on disabled people to be as neurotypical and able bodied as possible.
01:04:13 - Toni Dee asks what gets to bring you joy about what you do
01:04:25 - Jess talks about the joy of certain projects and holding on to those moments.
01:05:37 - Selena shares her joy of this podcast.
01:06:06 - James talks about his experience helping/talking to a teenager living with the war in Ukraine.
01:09:14 - Toni Dee thanks the guests for joining the podcast.
01:09:56 - Outro thanks to the team.